The Endo Exchange Ep. 7 On-Demand
What Two Sisters’ Surgeries Reveal About the Genetics and Full-Body Impact of Endometriosis
What if your persistent bowel issues, appendix pain, or fatigue weren’t just “normal,” but signs of a deeper, inherited condition? In this eye-opening episode of The Endo Exchange, we explore the powerful story of two sisters who underwent coordinated excision surgeries for endometriosis—and what their experience reveals about genetics, symptom variability, and the need for whole-body care.
Featuring:
Dr. Karli Provost Goldstein, DO, FACOG: Founder of ESSE Care and board-certified endometriosis surgeon, Dr. Goldstein shares insights on the genetic patterns of endometriosis, and how integrative, collaborative care can address symptoms across multiple systems—including bowel, appendix, uterus, and ovaries.
Dr. Daniel Marcus, MD: Fellowship-trained minimally invasive and robotic surgeon and Chair of Robotic Surgery at Marina del Rey Cedars-Sinai, Dr. Marcus explains how deep endometriosis lesions—often missed or dismissed—can be identified and removed through expert multidisciplinary surgical care.
Bailey Steeves – Patient Advocate & Endometriosis Survivor: Bailey’s journey began with memories of her mother’s painful periods—clues that became meaningful as her own symptoms emerged. With Dr. Goldstein’s guidance, Bailey pursued a diagnosis and underwent expert excision surgery. Her experience inspired her to encourage her sister to seek care, too. Today, she shares her story to raise awareness about the hereditary nature of endometriosis and the value of trusting your instincts and history.
Devyn Steeves – Patient Advocate & Endometriosis Survivor: After years of disruptive, unexplained symptoms, Devyn underwent excision surgery alongside her sister in a rare, same-day collaborative operation. Her disease deeply affected her rectum, uterus, and appendix—despite having entirely different symptoms from Bailey. Devyn now advocates for patients to explore their family health history, track symptoms over time, and pursue expert, multidisciplinary care that sees the whole picture.
What You’ll Learn:
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The Genetic Thread: Why understanding family history matters in diagnosing and treating endometriosis.
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Beyond the Pelvis: How the bowel, appendix, and other organs can be affected—and what symptoms to look for.
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Multidisciplinary Care in Action: How collaboration between specialists can improve diagnosis, treatment, and recovery.
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Real Stories, Real Differences: How even siblings with the same disease can have completely different symptoms.
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Advocacy Tools: Tips for tracking symptoms, navigating care, and feeling empowered in your journey.
This Conversation Is for You If:
You’ve ever wondered if your symptoms are connected, or if what your mother or sister went through might relate to what you’re experiencing now. If you’ve been told your GI issues, fatigue, or appendix pain are unrelated, but they flare with your cycle. If your symptoms don’t fit the textbook and you’re tired of feeling unheard.
It’s for you if you’re considering excision surgery, and want to know what true multidisciplinary care looks like. It’s for families navigating this condition together, and for individuals searching for clarity, connection, and compassionate care that addresses the full body—not just the reproductive organs.
Your story matters. Your symptoms are valid. And with the right team, whole-body healing is possible.
